About Us

Spoon Culture is a small handmade Spoonie owned business that focuses on quality products for the spoonie community.

Proudly owned and run by a Jewish LGBTQ Disabled Spoonie Woman

Our mission

Spoon Culture was founded in September 2020. We focus on custom symptom journals and service dog bandanas. Customizing is the heart of what we do- because why pay for something that isn't exactly what you need? (Also the shop owner is really picky and loves a lot of options). We are dedicated to making unique items that can benefit the spoonie community, whether that's a functional benefit like journals or just something cute that makes you happy like stickers.

We are also on a mission to not only make items that help but to give back. In 2021 we started donating 1 tree for every journal sold- adding up to more than 150 trees at the time of writing this. In 2022 we started donating 15% of the list price of service dog bandanas to Phoenix Assistance Dogs (PAD) a non-profit fully volunteer-run service dog organization that the shop owner is currently on the waitlist for. We will continue to donate to PAD for any service dog items added in the future.

About the Founder of Spoon Culture

Hi, I'm Alana and I'm bad at writing these things.

I'm a mid-20s spoonie originally from Florida but now living in Maryland. A little about me? I massive Avatar the Last Airbender nerd and love to play the Sims in my free time. The white dog in the photo is my retiring service dog Bridgette who I've had for going on 7 years, she's my best friend.

I've been living with chronic illness technically my entire life but mostly since I was 11. Two weeks into 6th grade the stomach pain I had been having for months got a lot worse and I was diagnosed with Crohn's Disease in the Fall of 2009. From there I was in and out of school for the next 7 years and my health only continued to get worse despite surgery and exhausting nearly every medication. Eventually, my health forced me to leave school. Over the next several years I developed and/or was diagnosed with Inappropriate Sinus Tachycardia (Previously a congenital heart rhythm condition), POTS, Ehlers-Danlos syndrome, Migraine and Vestibular Migraines, Spondyloarthritis, Hearing Loss (due to a medication reaction), a complex allergy condition with no name, PTSD, and others.

It always seemed like the only mentality those with chronic illness are allowed to have is the one of overcoming your limits and that your illness shouldn't define you, and I felt like I was failing for so long because I couldn't do those things. How can you when every aspect of your life is dictated by your illnesses? I think the best advice someone with an illness can get is that limits are good- they help you learn where you can go; and that it's ok for your illness to become part of your identity- when you learn to accept it as part of you, you can learn to move through life with it.

I started Spoon Culture for many reasons, but my main drive is to find ways to help others like me. I designed my first symptom journal after struggling to find one for years, and after encouragement from an online group I decided to open my Etsy shop soon after- I couldn't have imagined where it led.

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